Location: Vilnius, Lithuania
Registration: CCC Nordic – Baltic meeting Registration Form
· Day 1 (4th of Dec): Medical Science Centre – Faculty of Medicine (Žaliųjų Ežerų g. 2, Vilnius)
· Day 2 (5th of Dec): AC Hotel by Marriott Vilnius (J. Tumo-Vaižganto g. 27, Vilnius, 01107)
Overall Objectives:
· Strengthen collaboration among Nordic-Baltic Comprehensive Cancer Centers (CCCs) to establish a unified platform for clinical trials, data sharing, patient pathway management, network funding, and stakeholder relations.
· Incorporate perspectives from supporting countries, including Denmark, Finland, Iceland, Norway, Sweden, Estonia, Latvia, and Lithuania.
· Highlight cancer nursing and patient engagement, with ties to organizations like the Nordic Cancer Union (extending to Baltic patient groups).
Day 1 – Thursday, 4 December 2025
Time: 14:00–19:00
Theme: Strengthening CCC Collaboration & Infrastructure on Clinical Trials and Secondary Data Use
Venue: Medical Science Centre – Faculty of Medicine (Žaliųjų Ežerų g. 2Vilnius, 08406)
14:00–14:30 Welcome and Opening Remarks
· Welcome from Host Country Representative (Lithuania)
· Objectives of the Meeting – Chair of the Network
14:30–16:00 Session 1: Toward a Unified Nordic-Baltic CCC Clinical Trial Network
Chaired by Dina Dabaghie, Karolinska CCC, Sverige
Subtopics:
· Presentation of EUnetCCC task on Clinical Trials, and the activities that were performed and planned for 2026.
· Presenting examples on participation of Nordic Baltic representatives in EU projects contribute to advances in the topic of clinical trials (Estonia).
· Discussion session on the participation of Nordic Baltic CCCs in these projects, activities, suggestions for new activities/ topics of interests
15:00–15:30
Remote session: Danish implementation model for shared decision making
Dr. Malte Lebahn-Hadidi, Center for Shared Decision Making, Vejle, Denmark
16:00–16:15 Coffee Break
16:15–17:30 Parallel session: Unlocking Clinical Data for Secondary Use
Chaired by Mikael Petrén, Karolinska CCC, Sverige
Subtopics:
· Overview of the current state of health data use in cancer care and research.
· Key concepts, standards, and frameworks for health data interoperability and secondary use.
· Strategies for structuring, sharing, and using data effectively – balancing long-term vision with agile pilot projects.
· Identifying collaborative opportunities in the Nordic Baltic region within and beyond EUnetCCC.
16:15–17:30 Parallel session 2: Precision cancer Medicine – a Nordic-Baltic collaborative CCC based framework
Chaired by Live Fagereng, Oslo University Hospital CCC
· Introduction to newly establish Nordic Molecular Tumour Board
· Collaboration between NorTrial, SweTrial and Trial National
· Promoting cross border access to Clinical Trials
· Promoting clinical trials experience from Trial Nation
17:30–19:00 Parallel Working Sessions A. Cancer Nursing in CCCs
Chaired by Marius Čiurlionis – National Cancer Center, Vilnius, Lithuania
· Education and training of oncology nurses
· Cross-border nursing best practices
B. Patient-Centered Engagement
Chaired by Neringa Čiakienė – Lithuanian Cancer Patient Coalition – POLA, Vilnius, Lithuania
· Patient inclusion in trial design and care models
· Integration of patient representatives in CCC governance
· Shared decision making (experience from Vejle Center for Shared Decision Making)
Day 2 – Friday, 5 December 2025
Time: 09:00–15:30
Theme: Network Governance, Patient Pathways, and Certification Alignment
Venue: AC Hotel by Marriott Vilnius (J. Tumo-Vaižganto g. 27, Vilnius, 01107)
09:00–09:45 Day 2 Kickoff and Reflections
· Summary from Day 1 by session rapporteurs
o Summary of clinical trial session
o Summary of secondary data use session
o Summary of oncology nurses session
o Summary of patient engagement session
· Q&A on summaries
09:45–11:00 Session 3: Designing & Managing Patient Pathways in CCCs
Chaired by Helena Bärgström, Regionala cancersenter I samverkan, Sverige
Subtopics:
· How to integrate the design, management and improvement of cancer patient pathways in Comprehensive Cancer Center concept and the work of Cancer Centre Boards
· How to integrate the requirements set up for quality in cancer patient pathways in CCC certification processes?
11:00–11:15 Coffee Break
11:15–12:15 Session 4: CCC Certification Update
Chaired by Eva Jolly Karolinska CCC and Per Magnus Mæhle, OUS CCC
· Status of CCC certification across the region o EUnetCCC o OECI CCC
Interactive Discussion
12:15–13:15
Lunch & Networking
13:15–14:00 Session 5: Nordic-Baltic CCC Network Funding and Strategic Positioning
14.15 – 14.30
Brief information about a study analysing the current CCC certification in the Nordics
Chaired by Mef Nilbert, Skåne University Hospital
14:30–15:00 General Assembly & Closing Session
Post-Meeting (After 15:00):
· Joint discussion on EU Cancer Mission opportunities
o Facilitated roundtable on funding, projects, and collaborative proposals
· Networking with patient and nursing representatives
