Nordic-Baltic CCC Network Meeting 2025 Agenda
Location: Vilnius, Lithuania Registration: CCC Nordic – Baltic meeting Registration Form · Day 1 (4th of Dec): Medical Science Centre – Faculty of Medicine (Žaliųjų Ežerų g. 2, Vilnius) · Day 2 (5th of Dec): Hilton Garden Inn Vilnius City Centre (Gedimino pr. 44B, Vilnius, 01110) Overall Objectives: · Strengthen collaboration among Nordic-Baltic Comprehensive Cancer Centers (CCCs) to establish a unified platform for clinical trials, data sharing, patient pathway management, network funding, and stakeholder relations. · Incorporate perspectives from supporting countries, including Denmark, Finland, Iceland, Norway, Sweden, Estonia, Latvia, and Lithuania. · Highlight cancer nursing and patient engagement, with ties to organizations like the Nordic Cancer Union (extending to Baltic patient groups). Day 1 – Thursday, 4 December 2025 Time: 14:00–19:00 Theme: Strengthening CCC Collaboration & Infrastructure on Clinical Trials and Secondary Data Use Venue: Medical Science Centre – Faculty of Medicine (Žaliųjų Ežerų g. 2Vilnius, 08406) 14:00–14:30 Welcome and Opening Remarks · Welcome from Host Country Representative (Lithuania) · Objectives of the Meeting – Chair of the Network 14:30–16:00 Session 1: Toward a Unified Nordic-Baltic CCC Clinical Trial Network Chaired by Dina Dabaghie, Karolinska CCC, Sverige Subtopics: · Presentation of EUnetCCC task on Clinical Trials, and the activities that were performed and planned for 2026. · Presenting examples on participation of Nordic Baltic representatives in EU projects contribute to advances in the topic of clinical trials (Estonia). · Discussion session on the participation of Nordic Baltic CCCs in these projects, activities, suggestions for new activities/ topics of interests 15:00–15:30 Remote session: Danish implementation model for shared decision making Dr. Malte Lebahn-Hadidi, Center for Shared Decision Making, Vejle, Denmark 16:00–16:15 Coffee Break 16:15–17:30 Parallel session: Unlocking Clinical Data for Secondary Use Chaired by Mikael Petrén, Karolinska CCC, Sverige Subtopics: · Overview of the current state of health data use in cancer care and research. · Key concepts, standards, and frameworks for health data interoperability and secondary use. · Strategies for structuring, sharing, and using data effectively – balancing long-term vision with agile pilot projects. · Identifying collaborative opportunities in the Nordic Baltic region within and beyond EUnetCCC. 16:15–17:30 Parallel session 2: Precision cancer Medicine – a Nordic-Baltic collaborative CCC based framework Chaired by Live Fagereng, Oslo University Hospital CCC · Introduction to newly establish Nordic Molecular Tumour Board · Collaboration between NorTrial, SweTrial and Trial National · Promoting cross border access to Clinical Trials · Promoting clinical trials experience from Trial Nation 17:30–19:00 Parallel Working Sessions A. Cancer Nursing in CCCs Chaired by Marius Čiurlionis – National Cancer Center, Vilnius, Lithuania · Education and training of oncology nurses · Cross-border nursing best practices B. Patient-Centered Engagement Chaired by Neringa Čiakienė – Lithuanian Cancer Patient Coalition – POLA, Vilnius, Lithuania · Patient inclusion in trial design and care models · Integration of patient representatives in CCC governance · Shared decision making (experience from Vejle Center for Shared Decision Making) Day 2 – Friday, 5 December 2025 Time: 09:00–15:30 Theme: Network Governance, Patient Pathways, and Certification Alignment Venue: Hilton Garden Inn Vilnius City Centre (Gedimino pr. 44B, Vilnius, 01110) 09:00–09:45 Day 2 Kickoff and Reflections · Summary from Day 1 by session rapporteurs o Summary of clinical trial session o Summary of secondary data use session o Summary of oncology nurses session o Summary of patient engagement session · Q&A on summaries 09:45–11:00 Session 3: Designing & Managing Patient Pathways in CCCs Chaired by Helena Bärgström, Regionala cancersenter I samverkan, Sverige Subtopics: · How to integrate the design, management and improvement of cancer patient pathways in Comprehensive Cancer Center concept and the work of Cancer Centre Boards · How to integrate the requirements set up for quality in cancer patient pathways in CCC certification processes? 11:00–11:15 Coffee Break 11:15–12:15 Session 4: CCC Certification Update Chaired by Eva Jolly Karolinska CCC and Per Magnus Mæhle, OUS CCC · Status of CCC certification across the region o EUnetCCC o OECI CCC Interactive Discussion 12:15–13:15 Lunch & Networking 13:15–14:00 Session 5: Nordic-Baltic CCC Network Funding and Strategic Positioning 14.15 – 14.30 Brief information about a study analysing the current CCC certification in the Nordics Chaired by Mef Nilbert, Skåne University Hospital 14:30–15:00 General Assembly & Closing Session Post-Meeting (After 15:00): · Joint discussion on EU Cancer Mission opportunities o Facilitated roundtable on funding, projects, and collaborative proposals · Networking with patient and nursing representatives
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